telling our story
We have been fortunate to be provided the opportunity to share our daughter's story. Although this journey is difficult to share at times, we know it is an important one. Our daughters have an important message to share and we are lucky to be their voice.
We are honored that our friends at Versiti would take the time to share our family’s story.
Children's Hospital of Wisconsin filmed our journey in order to show what it is like moving through the heart transplant process. We are honored that they asked us to be apart of their story and are humbled by the video that they put together.
News Articles
Sarcomeric human cardiomyopathy registry (share)
SHARE, an organization devoted to researching cardiomyopathy, featured Dan's story on the patients section of their website. An amazing organization that highlights the impact that this condition has on children and families. The work they support will help create a better future for children suffering from cardiomyopathy.